Greetings everyone! It has been a while since I have written but I wanted to let you know that no news is good news! Thaddeus had a check up with the cardiologist last week and one with the birth to three program today. Both are very impressed with how well he is doing. To be honest, they are also impressed with how cute he is! The cardiologist said he doesn't need to see us again until November. The oxygen is gone, the pulse ox (machine that measures the oxygen in his blood) is gone, the scale is gone, the diuretic is gone, the antibiotic is gone, the feeding him on his side is gone, the not lifting him under the arms is gone. In fact other than a scar the only things left from the surgery are 1/2 of a baby aspirin each day and three doses of a blood pressure medicine each day. One of the major blessings that we have that both groups were happy to see is Thaddeus' size. He weighs in at just about the 50th percentile. To put that in perspective, the other five children who don't have cardiac disease all came in about the 50th percentile as babies. So despite the fact that many of these babies have trouble eating, Thaddeus is completely average weight. We even started him on cereal this weekend.
The birth to three folks thought he was making excellent progress. They were happy to be able to come and see a child who was doing so well. One lady even wanted to come back and visit him just because he was such a good cuddlier. They did find a small degree of developmental delay in the areas of rolling over and sitting up on his own, but that is completely expected and normal considering what he has been through. They didn't think it was any cause for concern. We will be making periodic trips to Milwaukee to have Thaddeus evaluated in the developmental clinic at Children's. They will keep an eye on his developmental progress and make sure he stays on track. They try to schedule those appointments on the same day as the cardiologist. It makes for a long day, but it saves us a trip.
So for now we just keep close watch on him and let him do his thing. Somewhere withing the next four years we will take him back in for the third surgery, but for now he is doing remarkably well! God is good!
The birth to three folks thought he was making excellent progress. They were happy to be able to come and see a child who was doing so well. One lady even wanted to come back and visit him just because he was such a good cuddlier. They did find a small degree of developmental delay in the areas of rolling over and sitting up on his own, but that is completely expected and normal considering what he has been through. They didn't think it was any cause for concern. We will be making periodic trips to Milwaukee to have Thaddeus evaluated in the developmental clinic at Children's. They will keep an eye on his developmental progress and make sure he stays on track. They try to schedule those appointments on the same day as the cardiologist. It makes for a long day, but it saves us a trip.
So for now we just keep close watch on him and let him do his thing. Somewhere withing the next four years we will take him back in for the third surgery, but for now he is doing remarkably well! God is good!
Hanging out in Jeremiah's Chair.
Swinging in the yard.
At the pool.
He loves that thumb almost as much as me!
He loves to jump.
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